On Wednesday, Leeds Grenville MPP Steve Clark will be joined by Kitchener-Conestoga MPP Michael Harris to discuss funding for rare disease treatment in Ontario. The MPPs will be joined by Charlie and Jessica Smith and other local people who live with Ehlers-Danlos syndrome, and other rare conditions.
The discussions are being held in advance of the February 25 debate of Harris’ Motion for an all-party committee to create recommendations for Rare Disease Treatment funding in Ontario.
The press conference and roundtable discussions happen at 10:30am tomorrow at the 1000 Islands Mall in Brockville. #TreatRareDisease